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Phelan-McDermid Syndrome Foundation Australia News

PMSF Australia Inaugural family conference

PMSF Australia Inaugural family conference

3 days, 163 attendees and 54 PMS families represented. PMSF Australia Inaugural Family Conference ✔️

Here's a recap of some of the highlights of a week we will never forget.

Our week began with the welcome event, a chance to get acquainted, share stories and recognise the efforts of some outstanding members of the PMS Family. Congratulations to the recipients of our Shining Star awards; Dave Brown, Oliver Elsworth and the Hannant Family.

It was with great pleasure we updated you on some of the achievements of the Foundation to date, most notably a feat we are incredibly proud of, achieving DGR status. Donations made to PMSF Australia are now tax deductible and we're confident this will kick fundraising efforts up a notch.

To our guests of honour, Dr Katy Phelan, Dr Curtis Rogers, Debbie Rogers and PMSF President Sue Lomas, your presence was a dream come true. No words could truly express how much the wisdom and love you shared with the Aussie contingent of the PMS family means. We are so blessed you could make it and can't wait to see you back on our shores soon - after ticking off the iconic Sydney Harbour Bridge Climb, we'll be taking some time to think of another Aussie adventure for your next visit.

To the conference speakers and medical professionals who took the time out of their busy schedules to attend and share their expertise with attendees, you were a wealth of knowledge and we have come away with an array of information we look forward to putting to use.

The conference would not have been possible without the incredible generosity of our sponsors, we cannot thank you enough for your support.

It was an absolute pleasure to work with Jess from the Novotel, Brighton Beach. Many thanks Jess for going above & beyond your role.

To our families and volunteers, Tanya, Kevin, Nathan, Brendan, Lauran, Caitlan, Leica, Joyce, Janice and Lynda, your tireless efforts in ensuring the conference came together are greatly appreciated, we couldn't have done it without you.

Victoria, your kind words all the way from the UK were a perfect way to round our week. It's so touching to know what we're doing here is being recognised further afield and you are truly leading by example.

More than $3,500 was raised through our raffles and conference shop, a great head start towards future fundraising - we look forward to passing the baton to other families in this quest too, remember, every contribution makes a difference.

Finally, to the PMS families and our very own superheroes who this conference was dedicated to, thank you for making the trip, embracing the opportunities it provided, sharing your stories and opening your hearts to allow those incredible bonds to form. We have been overwhelmed by the amazing feedback and are so proud of the success of our very first conference. We look forward to doing it all again soon.

With love,
PMSF Australia Directors,
Megan, Julie and Lisa xoxo


PMSF Australia Inaugural family conference
PMSF Australia Inaugural family conference
PMSF Australia Inaugural family conference
PMSF Australia Inaugural family conference
PMSF Australia Inaugural family conference
PMSF Australia Inaugural family conference
PMSF Australia Inaugural family conference
PMSF Australia Inaugural family conference
PMSF Australia Inaugural family conference

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