Date: 16 July 2017
Time: 6:00 am
Location: Sydney Opera House
Olie Elsworth, Dad to Ted was diagnosed with Phelan-McDermid Syndrome when he was 2 years old, the doctors knew very little about the syndrome as there are less than 1400 cases worldwide. Their suggestion was to "Google it".
Olie and a group of keen cyclists will be riding from Sydney to Brisbane over a week. Their route takes in the mountains of the Great Dividing Range, they wanted a challenge to show our support for the PMSF and to try and raise as much money as possible.
To follow the WHEELIN FOR PHELAN journey please see - https://www.facebook.com/wheelinforphelan/
Donations may be made to - https://www.gofundme.com/wheeling-for-phelan
PMSF worldwide membership is for immediate family members and carers of children/adults diagnosed with Phelan-McDermid Syndrome.
This membership is free and allows you to be connected to people in your local area.
Once you have registered, a Regional representative will be in contact to arrange your welcome pack and you will begin to receive regular newletters from the worldwide PMSF.Register Now