PMSF Australia is here to support the families of children and young adults with Phelan-McDermid Syndrome (P-MS).
We aim to provide family support, up to date information and raise awareness.
Megan is one of the PMSF Co-Regional Representatives for Australia & Director of PMSF Australia. Previously Megan has been involved in working in Not-For-Profit Organisations and is passionate about volunteering for local community charities & events.
Megan is Mum to Olivia, aged 4. Olivia was diagnosed with Phelan-McDermid Syndrome in 2011 at the age of 13 months. Olivia is a cheeky non-verbal little girl who loves to sign "FEED DOG" to her Daddy as soon as he walks in the door from work.
Lisa is one of the PMSF Co-Director of PMSF Australia. She works part-time in the adult education sector and the other time attending various interventions with Tom.
Lisa is Mum to Hugh 5 and Tom aged 4. Tom was diagnosed with Phelan-McDermid Syndrome, developmental delay and autism in 2013 at the age of 3 years. He is a boisterous energetic non-verbal boy who at the age of two had a vocabulary of around 15 words, then just after turning three regression occurred.
Tom loves to jump, swing, swim and chew and bite, not all good things.
Julie is a founding Director of PMSF Australia. Julie and her husband Kevin, have been motivated to help form an Australian Foundation, to support their grand-daughter Olivia and have a better understanding of PMS, by attending the bi-annual PMSF Conference in Orlando Florida in July 2014.
Julie is a local business women and Director of Kids of Macarthur Health Foundation and enjoys supporting local charities and junior sporting groups.
She hopes to help families feel supported by the Foundation and enabling them to access support easily.
PMSF worldwide membership is for immediate family members and carers of children/adults diagnosed with Phelan-McDermid Syndrome.
This membership is free and allows you to be connected to people in your local area.
Once you have registered, a Regional representative will be in contact to arrange your welcome pack and you will begin to receive regular newletters from the worldwide PMSF.Register Now